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Conceptions of autonomy and conceptions of the body in bioethics

In Jackie Leach Scully, Laurel Baldwin-Ragaven & Petya Fitzpatrick (eds.), Feminist Bioethics: At the Center, on the Margins. Johns Hopkins University Press (2010)

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  1. Towards including end-users in the design of prosthetic hands: Ethical analysis of survey of Australians with upper-limb difference.Mary Jean Walker, Eliza Goddard, Benjamin Stephens-Fripp & Gursel Alici - 2019 - Science and Engineering Ethics (2):1-27.
    Advances in prosthetic design should benefit people with limb difference. But empirical evidence demonstrates a lack of uptake of prosthetics among those with limb difference, including of advanced designs. Non-use is often framed as a problem of prosthetic design or a user’s response to prosthetics. Few studies investigate user experience and preferences, and those that do tend to address satisfaction or dissatisfaction with functional aspects of particular designs. This results in limited data to improve designs and, we argue, this is (...)
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  • On Replacement Body Parts.Mary Jean Walker - 2019 - Journal of Bioethical Inquiry 16 (1):61-73.
    Technological advances are making devices that functionally replace body parts—artificial organs and limbs—more widely used, and more capable of providing patients with lives that are close to “normal.” Some of the ethical issues this is likely to raise relate to how such prostheses are conceptualized. Prostheses are ambiguous between being inanimate objects and sharing in the status of human bodies—which already have an ambiguous status, as both objects and subjects. At the same time, the possibility of replacing body parts with (...)
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  • Whither Bioethics Now? The Promise of Relational Theory.Susan Sherwin & Katie Stockdale - 2017 - International Journal of Feminist Approaches to Bioethics 10 (1):7-29.
    This article reflects on the work of feminist bioethicists over the past ten years, reviewing how effective feminists have been in using relational theory to reorient bioethics and where we hope it will go from here. Feminist bioethicists have made significant achievements using relational theory to shape the notion of autonomy, bringing to light the relevance of patients' social circumstances and where they are situated within systems of privilege and oppression. But there is much work to be done to reorient (...)
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  • The Impact of Clinical Ethics Consultations on Physicians in a Latin American Context.Nathalia Rodríguez-Suárez & Paula Prieto-Martínez - forthcoming - Asian Bioethics Review:1-17.
    Clinical bioethics plays a significant role in hospital settings through bioethics consultations, which focus on providing ongoing assistance in complex situations within the doctor-patient dynamic. These consultations entail regular interaction between physicians and clinical bioethicists. This situation prompts an exploration into how bioethics consultations affect physicians. The current research aims to understand the influence of bioethics consultations on physicians’ bioethical knowledge by analyzing the lexical content in their patients’ medical records. Medical records are a synthesis carried out by physicians, often (...)
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  • New Zealand’s Approaches to Regulating the Commodification of the Female Body: A Comparative Analysis Reveals Ethical Inconsistencies.Lauren S. Otterman - 2023 - Journal of Bioethical Inquiry 20 (2):315-326.
    In 2003 and 2004, Aotearoa New Zealand enacted two key laws that regulate two very different ways in which the female body may be commodified. The Prostitution Reform Act 2003 (PRA) decriminalized prostitution, removing legal barriers to the buying and selling of commercial sexual services. The Human Assisted Reproductive Technology Act 2004 (HART Act), on the other hand, put a prohibition on commercial surrogacy agreements. This paper undertakes a comparative analysis of the ethical arguments underlying New Zealand’s legislative solutions to (...)
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  • A Polyvocal Body.Rebecca J. E. Levi - 2015 - Journal of Religious Ethics 43 (2):244-267.
    This essay aims to elucidate how multiple voices and traditions should interact with one another in the practice of ethics. First, it explores some of the major ways in which questions of bodily autonomy function in secular feminist and Jewish bioethical discourses. It then uses case studies to illuminate ways each discourse's concepts of bodily autonomy can be deeply problematic, and argues that the strengths in each discourse can serve as important correctives for the weaknesses in the other. It suggests (...)
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  • Social and Gendered Readings of Illness Narratives.Muriel Lederman - 2016 - Journal of Medical Humanities 37 (3):275-288.
    This essay recognizes that the interactions that define medical care are problematic and that narrative is invoked to overcome these strains. Being grounded in science, medicine, too, might be influenced by a particular world-view that arose in the natural philosophy of the Scientific Revolution. If narrative responds to this sort of medicine, it may retain traces of this mindset. A feminist approach responds to this viewpoint and may used beneficially to analyze both the story of medicine and the stories within (...)
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  • Relational autonomy in end-of-life care ethics: a contextualized approach to real-life complexities.Carlos Gómez-Vírseda, Yves de Maeseneer & Chris Gastmans - 2020 - BMC Medical Ethics 21 (1):1-14.
    BackgroundRespect for autonomy is a paramount principle in end-of-life ethics. Nevertheless, empirical studies show that decision-making, exclusively focused on the individual exercise of autonomy fails to align well with patients’ preferences at the end of life. The need for a more contextualized approach that meets real-life complexities experienced in end-of-life practices has been repeatedly advocated. In this regard, the notion of ‘relational autonomy’ may be a suitable alternative approach. Relational autonomy has even been advanced as a foundational notion of palliative (...)
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  • Is decision-making capacity an “essentially contested” concept in pediatrics?Eva De Clercq, Katharina Ruhe, Michel Rost & Bernice Elger - 2017 - Medicine, Health Care and Philosophy 20 (3):425-433.
    Key legislations in many countries emphasize the importance of involving children in decisions regarding their own health at a level commensurate with their age and capacities. Research is engaged in developing tools to assess capacity in children in order to facilitate their responsible involvement. These instruments, however, are usually based on the cognitive criteria for capacity assessment as defined by Appelbaum and Grisso and thus ill adapted to address the life-situation of children. The aim of this paper is to revisit (...)
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  • Body matters: rethinking the ethical acceptability of non-beneficial clinical research with children.Eva De Clercq, Domnita Oana Badarau, Katharina M. Ruhe & Tenzin Wangmo - 2015 - Medicine, Health Care and Philosophy 18 (3):421-431.
    The involvement of children in non-beneficial clinical research is extremely important for improving pediatric care, but its ethical acceptability is still disputed. Therefore, various pro-research justifications have been proposed throughout the years. The present essay aims at contributing to the on-going discussion surrounding children’s participation in non-beneficial clinical research. Building on Wendler’s ‘contribution to a valuable project’ justification, but going beyond a risk/benefit analysis, it articulates a pro-research argument which appeals to a phenomenological view on the body and vulnerability. It (...)
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  • Borrowed beauty? Understanding identity in Asian facial cosmetic surgery.Yves Saint James Aquino & Norbert Steinkamp - 2016 - Medicine, Health Care and Philosophy 19 (3):431-441.
    This review aims to identify (1) sources of knowledge and (2) important themes of the ethical debate related to surgical alteration of facial features in East Asians. This article integrates narrative and systematic review methods. In March 2014, we searched databases including PubMed, Philosopher’s Index, Web of Science, Sociological Abstracts, and Communication Abstracts using key terms “cosmetic surgery,” “ethnic*,” “ethics,” “Asia*,” and “Western*.” The study included all types of papers written in English that discuss the debate on rhinoplasty and blepharoplasty (...)
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