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  1. Biobanks for non-clinical purposes and the new law on forensic biobanks: does the Italian context protect the rights of minors?Pamela Tozzo, Renzo Pegoraro & Luciana Caenazzo - 2010 - Journal of Medical Ethics 36 (12):775-778.
    Biobanks are an important resource for medical research. Genetic research on biological material from minors can yield valuable information that can improve our understanding of genetic–environmental interactions and the genesis and development of early onset genetic disorders. The major ethical concerns relating to biobanks concern consent, privacy, confidentiality, commercialisation, and the right to know or not to know. However, research on paediatric data raises specific governance and ethical questions with regard to consent and privacy. We have considered the Italian normative (...)
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  • Changing Ethical Frameworks: From Individual Rights to the Common Good?Margit Sutrop - 2011 - Cambridge Quarterly of Healthcare Ethics 20 (4):533-545.
    Whereas in the 1970s early bioethicists believed that bioethics is an arena for the application of philosophical theories of utilitarianism, deontology, and natural law thinking, contemporary policy-oriented bioethicists seem rather to be keen on framing ethical issues through political ideologies. Bioethicists today are often labeled “liberal” or “communitarian,” referring to their different understandings of the relationship between the individual and society. Liberal individualism, with its conceptual base of autonomy, dignity, and privacy, enjoyed a long period of dominance in bioethics, but (...)
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  • The Concepts of Common Good and Public Interest: From Plato to Biobanking.Kadri Simm - 2011 - Cambridge Quarterly of Healthcare Ethics 20 (4):554-562.
    The expression “common good” usually conjures up benevolent associations: it is something to be desired, a worthy goal, and it would be a brave person who declared he or she was against the common good. Yet modern times have taught us to be critical and even suspicious of such grand rhetoric, leading us to query what lies behind this ambitious notion, who formulates what it stands for, and how such formulations have been reached.
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  • Biobanking research on oncological residual material: a framework between the rights of the individual and the interest of society. [REVIEW]Luciana Caenazzo, Pamela Tozzo & Renzo Pegoraro - 2013 - BMC Medical Ethics 14 (1):17.
    The tissue biobanking of specific biological residual materials, which constitutes a useful resource for medical/scientific research, has raised some ethical issues, such as the need to define which kind of consent is applicable for biological residual materials biobanks.
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  • Is best interests a relevant decision making standard for enrolling non-capacitated subjects into clinical research?Jeffrey T. Berger - 2011 - Journal of Medical Ethics 37 (1):45-49.
    The ‘best interests’ decision making standard is used in clinical care to make necessary health decisions for non-capacitated individuals for whom neither explicit nor inferred wishes are known. It has been also widely acknowledged as a basis for enrolling some non-capacitated adults into clinical research such as emergency, critical care, and dementia research. However, the best interests standard requires that choices provide the highest net benefit of available options, and clinical research rarely meets this criterion. In the context of modern (...)
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