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  1. From FAIR data to fair data use: Methodological data fairness in health-related social media research.Hywel Williams, Lora Fleming, Benedict W. Wheeler, Rebecca Lovell & Sabina Leonelli - 2021 - Big Data and Society 8 (1).
    The paper problematises the reliability and ethics of using social media data, such as sourced from Twitter or Instagram, to carry out health-related research. As in many other domains, the opportunity to mine social media for information has been hailed as transformative for research on well-being and disease. Considerations around the fairness, responsibilities and accountabilities relating to using such data have often been set aside, on the understanding that as long as data were anonymised, no real ethical or scientific issue (...)
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  • Mountains and Molehills When Using Social Media as a Research Support Tool.Holly Fernandez Lynch & Emily A. Largent - 2019 - American Journal of Bioethics 19 (6):64-66.
    Volume 19, Issue 6, June 2019, Page 64-66.
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  • Social Media as an Ethical Tool for Retention in Clinical Trials.Luke Gelinas & Barbara E. Bierer - 2019 - American Journal of Bioethics 19 (6):62-64.
    Volume 19, Issue 6, June 2019, Page 62-64.
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  • Nonexceptionalism, Research Risks, and Social Media: Response to Open Peer Commentaries on “Using Social Media as a Research Recruitment Tool: Ethical Issues and Recommendations”.Luke Gelinas, Robin Pierce, Sabune Winkler, Glenn Cohen, Holly Fernandez Lynch & Barbara E. Bierer - 2017 - American Journal of Bioethics 17 (5):1-3.
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  • “They know what they are getting into:” Researchers confront the benefits and challenges of online recruitment for HIV research.Elise Bragard, Celia B. Fisher & Brenda L. Curtis - 2020 - Ethics and Behavior 30 (7):481-495.
    ABSTRACT Online research has become a critical recruitment modality for understanding and reducing health disparities among hidden populations most at risk for HIV infection. There is a lack of consensus and guidelines for the responsible conduct of online recruitment for HIV risk populations. Using semi-structured phone interviews, this study drew on the experiences of principal investigators engaged in online HIV research to illuminate scientific and ethical benefits and challenges of social media recruitment. Using Thematic Analysis five major themes emerged: sampling (...)
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