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  1. Is it ethically permissible for GPs to promote non-directed altruistic kidney donation to healthy adults?Richard Armitage - forthcoming - Journal of Medical Ethics.
    Doctors hold coexisting ethical duties to avoid causing deliberate harm to their patients (non-maleficence), to act in patients’ best interests (beneficence), to respect patients’ right to self-determination (autonomy) and to ensure that costs and benefits are fairly distributed among patients (justice). In the context of non-directed altruistic kidney donations (NDAKD), doctors’ duties of autonomy and justice are in tension with those of non-maleficence and beneficence. This article examines these competing duties across three scenarios in which general practitioners (GPs) could promote (...)
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  • Balancing obligations: should written information about life-sustaining treatment be neutral?Vicki Xafis, Dominic Wilkinson, Lynn Gillam & Jane Sullivan - 2015 - Journal of Medical Ethics 41 (3):234-239.
    Parents who are facing decisions about life-sustaining treatment for their seriously ill or dying child are supported by their child's doctors and nurses. They also frequently seek other information sources to help them deal with the medical and ethical questions that arise. This might include written or web-based information. As part of a project involving the development of such a resource to support parents facing difficult decisions, some ethical questions emerged. Should this information be presented in a strictly neutral fashion? (...)
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  • ‘There is a lot of good in knowing, but there is also a lot of downs’: public views on ethical considerations in population genomic screening.Amelia K. Smit, Gillian Reyes-Marcelino, Louise Keogh, Anne E. Cust & Ainsley J. Newson - 2021 - Journal of Medical Ethics 47 (12):e28-e28.
    Publics are key stakeholders in population genomic screening and their perspectives on ethical considerations are relevant to programme design and policy making. Using semi-structured interviews, we explored social views and attitudes towards possible future provision of personalised genomic risk information to populations to inform prevention and/or early detection of relevant conditions. Participants were members of the public who had received information on their personal genomic risk of melanoma as part of a research project. The focus of the analysis presented here (...)
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  • Geneticization and bioethics: advancing debate and research. [REVIEW]Vilhjálmur Árnason & Stefán Hjörleifsson - 2007 - Medicine, Health Care and Philosophy 10 (4):417-431.
    In the present paper, we focus on the role that the concept of geneticization has played in the discussion about health care, bioethics and society. The concept is discussed and examples from the evolving discourse about geneticization are critically analyzed. The relationship between geneticization, medicalization and biomedicalization is described, emphasizing how debates about the latter concepts can inspire future research on geneticization. It is shown how recurrent themes from the media coverage of genetics portray typical traits of geneticization and thus (...)
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  • Donor Conception Disclosure: Directive or Non-Directive Counselling?Inez Raes, An Ravelingien & Guido Pennings - 2016 - Journal of Bioethical Inquiry 13 (3):369-379.
    It is widely agreed among health professionals that couples using donor insemination should be offered counselling on the topic of donor conception disclosure. However, it is clear from the literature that there has long been a lack of agreement about which counselling approach should be used in this case: a directive or a non-directive approach. In this paper we investigate which approach is ethically justifiable by balancing the two underlying principles of autonomy and beneficence. To overrule one principle in favour (...)
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  • Informed consent and the misattributed paternity problem in genetic counseling.Erica K. Lucast - 2006 - Bioethics 21 (1):41–50.
    ABSTRACT When misattributed paternity is discovered in the course of genetic testing, a genetic counselor is presented with a dilemma concerning whether to reveal this information to the clients. She is committed to treating the clients equally and enabling informed decision making, but disclosing the information may carry consequences for the woman that the counselor cannot judge in advance. A frequent suggestion aimed at avoiding this problem is to include the risk of discovering nonpaternity in the informed consent process for (...)
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  • Should health care professionals encourage living kidney donation?Medard T. Hilhorst, Leonieke W. Kranenburg & Jan J. V. Busschbach - 2006 - Medicine, Health Care and Philosophy 10 (1):81-90.
    Living kidney donation provides a promising opportunity in situations where the scarcity of cadaveric kidneys is widely acknowledged. While many patients and their relatives are willing to accept its benefits, others are concerned about living kidney programs; they appear to feel pressured into accepting living kidney transplantations as the only proper option for them. As we studied the attitudes and views of patients and their relatives, we considered just how actively health care professionals should encourage living donation. We argue that (...)
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  • From a Right to a Preference: Rethinking the Right to Genomic Ignorance.Lisa Dive - 2021 - Journal of Medicine and Philosophy 46 (5):605-629.
    The “right not to know” has generated significant discussion, especially regarding genetic information. In this paper, I argue that this purported right is better understood as a preference and that treating it as a substantive right has led to confusion. To support this claim, I present three critiques of the way the right not to know has been characterized. First, I demonstrate that the many conceptualizations of this right have hampered debate. Second, I show that the way autonomy is conceptualized (...)
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  • Ethical aspects of undergoing a predictive genetic testing for Huntington's disease.Petra Lilja Andersson, Niklas Juth, Åsa Petersén, Caroline Graff & Anna-Karin Edberg - 2013 - Nursing Ethics 20 (2):189-199.
    The aim of this study was to describe the experiences of undergoing a presymptomatic genetic test for the hereditary and fatal Huntington’s disease, using a case study approach. The study was based on 18 interviews with a young woman and her husband from the decision to undergo the test, to receiving the results and trying to adapt to them, which were analysed using a life history approach. The findings show that the process of undergoing a presymptomatic test involves several closely (...)
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