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  1. Bounded Justice and the Limits of Health Equity.Melissa S. Creary - 2021 - Journal of Law, Medicine and Ethics 49 (2):241-256.
    Programs, policies, and technologies — particularly those concerned with health equity — are often designed with justice envisioned as the end goal. These policies or interventions, however, frequently fail to recognize how the beneficiaries have historically embodied the cumulative effects of marginalization, which undermines the effectiveness of the intended justice. These well-meaning attempts at justice are bounded by greater socio-historical constraints. Bounded justice suggests that it is impossible to attend to fairness, entitlement, and equity when the basic social and physical (...)
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  • Modeling Ethics: Approaches to Data Creep in Higher Education.Madisson Whitman - 2021 - Science and Engineering Ethics 27 (6):1-18.
    Though rapid collection of big data is ubiquitous across domains, from industry settings to academic contexts, the ethics of big data collection and research are contested. A nexus of data ethics issues is the concept of creep, or repurposing of data for other applications or research beyond the conditions of original collection. Data creep has proven controversial and has prompted concerns about the scope of ethical oversight. Institutional review boards offer little guidance regarding big data, and problematic research can still (...)
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  • Ethics Expertise and Public Credibility: A Case Study of the Ethical Principle of Justice.Yoshio Nukaga - 2016 - Science, Technology, and Human Values 41 (4):709-731.
    In recent years, scholars in science and technology studies have examined the advice that experts make for the governance of biomedicine. This STS scholarship, however, has not yet explained how the credibility of ethics expertise in public bioethics is produced from particular conditions and extended to different settings. This article describes how a bioethics commission created the ethical principle of justice and examines how the ethics expertise established public credibility on the justice principle. The findings suggest that the principle of (...)
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  • Narratives of Participation in Autism Genetics Research.Jennifer S. Singh - 2015 - Science, Technology, and Human Values 40 (2):227-249.
    This article provides empirical evidence of the social context and moral reasoning embedded within a parents’ decision to participate in autism genetics research. Based on in-depth interviews of parents who donated their family’s blood and medical information to an autism genetic database, three narratives of participation are analyzed, including the altruistic parent, the obligated parent, and the diagnostic parent. Although parents in this study were not generally concerned with bioethical principles such as autonomy and the issues of informed consent and/or (...)
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  • A World of Materialisms: Postcolonial Feminist Science Studies and the New Natural.Angela Willey - 2016 - Science, Technology, and Human Values 41 (6):991-1014.
    Research often characterized as “new materialist” has staged a return/turn to nature in social and critical theory by bringing “matter” into the purview of our research. While this growing impetus to take nature seriously fosters new types of interdisciplinarity and thus new resources for knowing our nature-cultural worlds, its capacity to deal with power’s imbrication in how we understand “nature” is curtailed by its failures to engage substantively with the epistemological interventions of postcolonial feminist science studies. The citational practices of (...)
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  • Informed Refusal: Toward a Justice-Based Bioethics.Ruha Benjamin - 2016 - Science, Technology, and Human Values 41 (6):967-990.
    “Informed consent” implicitly links the transmission of information to the granting of permission on the part of patients, tissue donors, and research subjects. But what of the corollary, informed refusal? Drawing together insights from three moments of refusal, this article explores the rights and obligations of biological citizenship from the vantage point of biodefectors—those who attempt to resist technoscientific conscription. Taken together, the cases expose the limits of individual autonomy as one of the bedrocks of bioethics and suggest the need (...)
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  • Resisting Power, Retooling Justice: Promises of Feminist Postcolonial Technosciences.Banu Subramaniam & Anne Pollock - 2016 - Science, Technology, and Human Values 41 (6):951-966.
    This special issue explores intersections of feminism, postcolonialism, and technoscience. The papers emerged out of a 2014 research seminar on Feminist Postcolonial Science and Technology Studies at the Institute for Research on Women and Gender, University of Michigan. Through innovative engagement with rich empirical cases and theoretical trends in postcolonial theory, feminist theory, and STS, the papers trace local and global circulations of technoscience. They illuminate ways in which science and technology are imbricated in circuits of state power and global (...)
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  • Lifestyle Vaccines and Public Health: Exploring Policy Options for a Vaccine to Stop Smoking.Anna Wolters, Guido de Wert, Onno C. P. van Schayck & Klasien Horstman - 2016 - Public Health Ethics 9 (2):183-197.
    Experimental vaccines are being developed for the treatment of ‘unhealthy lifestyles’ and associated chronic illnesses. Policymakers and other stakeholders will have to deal with the ethical issues that this innovation path raises: are there morally justified reasons to integrate these innovative biotechnologies in future health policies? Should public money be invested in further research? Focusing on the case of an experimental nicotine vaccine, this article explores the ethical aspects of ‘lifestyle vaccines’ for public health. Based on findings from a qualitative (...)
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  • My Bioethics Will Be Intersectional or It Will Be [Bleep].Patrick R. Grzanka, Jenny Dyck Brian & Janet K. Shim - 2016 - American Journal of Bioethics 16 (4):27-29.
  • Routine, Scale, and Inequality: Introduction to the Special Issue on Ethics, Organizations, and Science.Jennifer L. Croissant - 2015 - Science, Technology, and Human Values 40 (2):167-175.
    This special issue of Science, Technology, & Human Values contains articles concerned with ethics in and around scientific practice. These articles ask how organizational routines both produce and diffuse concerns about the risks and benefits of scientific research and products, and why context remains elusive in formal ethical analysis. These cases are from diverse settings, with several touching on issues of economic inequality and participation in scientific research. Each article describes in some way how cultural and institutional configurations shape ethical (...)
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  • On the Suspended Sentences of the Scott Sisters: Mass Incarceration, Kidney Donation, and the Biopolitics of Race in the United States.Anne Pollock - 2015 - Science, Technology, and Human Values 40 (2):250-271.
    In December 2010, the governor of Mississippi suspended the dual life sentences of two African American sisters who had been imprisoned for sixteen years on an extraordinary condition: that Gladys Scott donate a kidney to her ailing sister Jamie Scott. The Scott Sisters’ case is a highly unusual one, yet it is a revealing site for inquiry into US biopolitics more broadly. Close attention to the conditional release and its context demands a broader frame than traditional bioethics and helps to (...)
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  • Keeping an Eye on Power in Maintaining Racial Oppression and Race-Based Violence.Katrina Karkazis, Laura Mamo & Ugo Edu - 2016 - American Journal of Bioethics 16 (4):25-27.
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  • Building New Bioethical Practices Through Feminist Pedagogies.Sara Giordano - 2016 - International Journal of Feminist Approaches to Bioethics 9 (1):81-103.
    In this paper, I describe a collaborative project involving two feminist trained scientists1 in consultation with a bioethicist, a policy analyst, and a research scientist funded by the National Academies Keck Futures Initiative for the design and implementation of a training program for ethics in synthetic biology. In spring 2011, the project culminated in our coteaching an experimental graduate seminar on ethics and synthetic biology.Synthetic biology most commonly refers to an interdisciplinary field that aims to merge engineering and biology methods (...)
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