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  1. “Nobody Understands”: On a Cardinal Phenomenon of Palliative Care.Tomasz Okon - 2006 - Journal of Medicine and Philosophy 31 (1):13 – 46.
    In the clinical practice of palliative medicine, recommended communication models fail to approximate the truth of suffering associated with an impending death. I provide evidence from patients' stories and empiric research alike to support this observation. Rather than attributing this deficiency to inadequate training or communication skills, I examine the epistemological premises of the biomedical language governing the patient-physician communication. I demonstrate that the contemporary biomedicine faces a fundamental aporetic occlusion in attempting to examine death. This review asserts that the (...)
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  • Futility, Autonomy, and Cost in End-of-Life Care.Mary Ann Baily - 2011 - Journal of Law, Medicine and Ethics 39 (2):172-182.
    This paper uses the controversy over the denial of care on futility grounds as a window into the broader issue of the role of cost in decisions about treatment near the end of life. The focus is on a topic that has not received the attention it deserves: the difference between refusing medical treatment and demanding it. The author discusses health care reform and the ethics of cost control, arguing that we cannot achieve universal access to quality care at affordable (...)
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  • Futility, Autonomy, and Cost in End-of-Life Care.Mary Ann Baily - 2011 - Journal of Law, Medicine and Ethics 39 (2):172-182.
    In 1989, Helga Wanglie, 86 years old, broke her hip. This began a medical downhill course that a year later caused her health care providers to conclude that she would not benefit from continued medical treatment. It would be futile, and therefore, should not be provided. Her husband disagreed, and the conflict eventually led to a lawsuit. The Wanglie case touched off an extended debate in the medical and bioethical literature about medical futility: what it means and how useful the (...)
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