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  1. Supported Decision Making With People at the Margins of Autonomy.Andrew Peterson, Jason Karlawish & Emily Largent - 2020 - American Journal of Bioethics 21 (11):4-18.
    This article argues that supported decision making is ideal for people with dynamic cognitive and functional impairments that place them at the margins of autonomy. First, we argue that guardianship and similar surrogate decision-making frameworks may be inappropriate for people with dynamic impairments. Second, we provide a conceptual foundation for supported decision making for individuals with dynamic impairments, which integrates the social model of disability with relational accounts of autonomy. Third, we propose a three-step model that specifies the necessary conditions (...)
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  • Autonomous Decisions by Couples in Reproductive Care.Amal Matar, Anna T. Höglund, Pär Segerdahl & Ulrik Kihlbom - 2020 - BMC Medical Ethics 21 (1):1-8.
    Background Preconception Expanded Carrier Screening is a genetic test offered to a general population or to couples who have no known risk of recessive and X-linked genetic diseases and are interested in becoming parents. A test may screen for carrier status of several autosomal recessive diseases at one go. Such a program has been piloted in the Netherlands and may become a reality in more European countries in the future. The ethical rationale for such tests is that they enhance reproductive (...)
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  • The Role of Caregivers in the Clinical Pathway of Patients Newly Diagnosed with Breast and Prostate Cancer: A Study Protocol.Clizia Cincidda, Serena Oliveri, Virginia Sanchini & Gabriella Pravettoni - 2022 - Frontiers in Psychology 13.
    BackgroundCaregivers may play a fundamental role in the clinical pathway of cancer patients. They provide emotional, informational, and functional support as well as practical assistance, and they might help mediate the interaction and communication with the oncologists when care options are discussed, or decisions are made. Little is known about the impact of dyadic dynamics on patient-doctor communication, patient's satisfaction, or adherence to the therapies. This study protocol aims to evaluate the efficacy of a psychological support intervention on patients-caregivers relationship (...)
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