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  1. The Bite of Rights in Paternalism.Norbert Paulo - 2015 - In Thomas Schramme (ed.), New Perspectives on Paternalism and Health Care. Cham: Springer Verlag.
    This paper scrutinizes the tension between individuals’ rights and paternalism. I will argue that no normative account that includes rights of individuals can justify hard paternalism since the infringement of a right can only be justified with the right or interest of another person, which is never the case in hard paternalism. Justifications of hard paternalistic actions generally include a deviation from the very idea of having rights. The paper first introduces Tom Beauchamp as the most famous contemporary hard paternalist (...)
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  • Psychopathy: Morally Incapacitated Persons.Heidi Maibom - 2017 - In Thomas Schramme & Steven Edwards (eds.), Handbook of the Philosophy of Medicine. Springer. pp. 1109-1129.
    After describing the disorder of psychopathy, I examine the theories and the evidence concerning the psychopaths’ deficient moral capacities. I first examine whether or not psychopaths can pass tests of moral knowledge. Most of the evidence suggests that they can. If there is a lack of moral understanding, then it has to be due to an incapacity that affects not their declarative knowledge of moral norms, but their deeper understanding of them. I then examine two suggestions: it is their deficient (...)
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  • Personal identity, autonomy and advance statements.Anthony Wrigley - 2007 - Journal of Applied Philosophy 24 (4):381–396.
    Recent legal rulings concerning the status of advance statements have raised interest in the topic but failed to provide any definitive general guidelines for their enforcement. I examine arguments used to justify the moral authority of such statements. The fundamental ethical issue I am concerned with is how accounts of personal identity underpin our account of moral authority through the connection between personal identity and autonomy. I focus on how recent Animalist accounts of personal identity initially appear to provide a (...)
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  • Moral Authority and Proxy Decision-Making.Anthony Wrigley - 2015 - Ethical Theory and Moral Practice 18 (3):631-647.
    IntroductionExtended decision -making through the use of proxy decision -makers has been enshrined in a range of International Codes, Professional Guidance and Statute,For example, the UK Mental Capacity Act section 9.1; The General Medical Council ; the US National Guardianship Association ; Nuffield Council on Bioethics ; CIOMS-WHO section 6. Court cases such as Re Quinlan in the US have also contributed to establishing the groundings for the legal status of the proxy, albeit in terms of who might be suitable (...)
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  • The harm principle, personal identity and identity-relative paternalism.Dominic Wilkinson - 2023 - Journal of Medical Ethics 49 (6):393-402.
    Is it ethical for doctors or courts to prevent patients from making choices that will cause significant harm to themselves in the future? According to an important liberal principle the only justification for infringing the liberty of an individual is to prevent harm to others; harm to the self does not suffice.In this paper, I explore Derek Parfit’s arguments that blur the sharp line between harm to self and others. I analyse cases of treatment refusal by capacitous patients and describe (...)
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  • Personal Identity, Possible Worlds, and Medical Ethics.Nils-Frederic Wagner - 2022 - Medicine, Health Care and Philosophy: A European Journal (3):429-437.
    Thought experiments that concoct bizarre possible world modalities are standard fare in debates on personal identity. Appealing to intuitions raised by such evocations is often taken to settle differences between conflicting theoretical views that, albeit, have practical implications for ethical controversies of personal identity in health care. Employing thought experiments that way is inadequate, I argue, since personhood is intrinsically linked to constraining facts about the actual world. I defend a moderate modal skepticism according to which intuiting across conceptually incongruent (...)
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  • Personal identity and the Phineas Gage effect.Kevin P. Tobia - 2015 - Analysis 75 (3):396-405.
    Phineas Gage’s story is typically offered as a paradigm example supporting the view that part of what matters for personal identity is a certain magnitude of similarity between earlier and later individuals. Yet, reconsidering a slight variant of Phineas Gage’s story indicates that it is not just magnitude of similarity, but also the direction of change that affects personal identity judgments; in some cases, changes for the worse are more seen as identity-severing than changes for the better of comparable magnitude. (...)
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  • Personal Identity, Direction of Change, and Neuroethics.Kevin Patrick Tobia - 2016 - Neuroethics 9 (1):37-43.
    The personal identity relation is of great interest to philosophers, who often consider fictional scenarios to test what features seem to make persons persist through time. But often real examples of neuroscientific interest also provide important tests of personal identity. One such example is the case of Phineas Gage – or at least the story often told about Phineas Gage. Many cite Gage’s story as example of severed personal identity; Phineas underwent such a tremendous change that Gage “survived as a (...)
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  • Reassessing the Reliability of Advance Directives.Thomas May - 1997 - Cambridge Quarterly of Healthcare Ethics 6 (3):325.
    A competent patient has the right to refuse treatment necessary to sustain life. However, for many end-of-life decisions, we lack direct access to the wishes of a competent patient. Some treatment decisions near the end of life involve patients with severely diminished mental capacity, some involve patients who are unable to communicate, and some involve patients who are simply unable or unwilling to participate in decisionmaking due to the nature or severity of their illness.
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  • The near-failure of advance directives: why they should not be abandoned altogether, but their role radically reconsidered.Marta Spranzi & Véronique Fournier - 2016 - Medicine, Health Care and Philosophy 19 (4):563-568.
    Advance directives have been hailed for two decades as the best way to safeguard patients’ autonomy when they are totally or partially incompetent. In many national contexts they are written into law and they are mostly associated with end-of-life decisions. Although advocates and critics of ADs exchange relevant empirical and theoretical arguments, the debate is inconclusive. We argue that this is so for good reasons: the ADs’ project is fraught with tensions, and this is the reason why they are both (...)
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  • Indeterminacy of identity and advance directives for death after dementia.Andrew Sneddon - 2020 - Medicine, Health Care and Philosophy 23 (4):705-715.
    A persistent question in discussions of the ethics of advance directives for euthanasia is whether patients who go through deep psychological changes retain their identity. Rather than seek an account of identity that answers this question, I argue that responsible policy should directly address indeterminacy about identity directly. Three sorts of indeterminacy are distinguished. Two of these—epistemic indeterminacy and metaphysical indeterminacy—should be addressed in laws/policies regarding advance directives for euthanasia.
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  • Prospective Autonomy and Critical Interests: A Narrative Defense of the Moral Authority of Advance Directives.Ben A. Rich - 1997 - Cambridge Quarterly of Healthcare Ethics 6 (2):138-147.
    In the mid to late 1980s a debate arose over the moral and legal authority of advance medical directives. At the center of this debate were two point-counterpoint law journal articles by Rebecca Dresser and Nancy Rhoden. What appeared to have the makings of an ongoing critical dialogue ended with the untimely death of Nancy Rhoden. Rebecca Dresser, however, has continued her challenge of advance directives in numerous publications, most recently in a critique of Ronald Dworkin's Life's Dominion. Like Rhoden, (...)
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  • Contemporary Transplantation Initiatives: Where's the Harm in Them?David P. T. Price - 1996 - Journal of Law, Medicine and Ethics 24 (2):139-149.
    Two contemporary strategies in cadaver organ transplantation, both with the potential to affect significantly expanding organ transplant waiting list sizes, have evolved: elective ventilation and use of nonheart-beating donors. Both are undergoing a period of critical review. It is not clear how widely EV is practiced around the world. In Great Britain, the Royal Devon and Exeter Hospital was the first hospital to develop an EV protocol, in 1988, after which other British hospitals followed suit. In the 1980s, new NHBD (...)
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  • Contemporary Transplantation Initiatives: Where's the Harm in Them?David P. T. Price - 1996 - Journal of Law, Medicine and Ethics 24 (2):139-149.
    Two contemporary strategies in cadaver organ transplantation, both with the potential to affect significantly expanding organ transplant waiting list sizes, have evolved: elective ventilation and use of nonheart-beating donors. Both are undergoing a period of critical review. It is not clear how widely EV is practiced around the world. In Great Britain, the Royal Devon and Exeter Hospital was the first hospital to develop an EV protocol, in 1988, after which other British hospitals followed suit. In the 1980s, new NHBD (...)
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  • Threats to Neurosurgical Patients Posed by the Personal Identity Debate.Sabine Müller, Merlin Bittlinger & Henrik Walter - 2017 - Neuroethics 10 (2):299-310.
    Decisions about brain surgery pose existential challenges because they are often decisions about life or death, and sometimes about possible personality changes. Therefore they require rigorous neuroethical consideration. However, we doubt whether metaphysical interpretations of ambiguous statements of patients are useful for deriving ethical and legal conclusions. Particularly, we question the application of psychological theories of personal identity on neuroethical issues for several reasons. First, even the putative “standard view” on personal identity is contentious. Second, diverse accounts of personal identity (...)
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  • Bridging the Gap Between Theory and Practice: Philosophy Through a Wide-Angle Lens.Janet Malek - 2018 - Journal of Medicine and Philosophy 43 (1):1-7.
    Philosophers who specialize in bioethics face a distinctive set of challenges in our work: to bring the theoretical insights of philosophical work and methodology to practical dilemmas affecting a diverse group of stakeholders every day. This article describes some of the key contributions that philosophy can make to the field of bioethics. It also identifies some of the pitfalls that can undermine the value of a philosophical approach when used to analyze questions arising in the real world. Recognition of the (...)
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  • Women in Labor: Some Issues About Informed Consent.Rosalind Ekman Ladd - 1989 - Hypatia 4 (3):37-44.
    Women wishing hospital admission for childbirth are asked to sign very general pre-admission consent forms. The use of such forms suggests that women in labor are considered incompetent to give informed consent. This paper explores some of the problems with advance directives and general consent, and argues that since women in labor are not generally incompetent, it is not appropriate to require this kind of consent of them.
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  • Advance euthanasia directives and the Dutch prosecution.Jonathan A. Hughes - 2021 - Journal of Medical Ethics 47 (4):253-256.
    In a recent Dutch euthanasia case, a woman underwent euthanasia on the basis of an advance directive, having first been sedated without her knowledge and then restrained by members of her family while the euthanasia was administered. This article considers some implications of the criminal court’s acquittal of the doctor who performed the euthanasia. Supporters of advance euthanasia directives have welcomed the judgement as providing a clarification of the law, especially with regard to the admissibility of contextual evidence in interpreting (...)
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  • Rethinking the Precedent Autonomy, Current Minimal Autonomy, and Current Well-Being in Medical Decisions for Persons with Dementia.Yuanyuan Huang, Yali Cong & Zhifeng Wang - 2022 - Journal of Bioethical Inquiry 19 (1):163-175.
    As patient autonomy expands, a highly controversial issue has emerged. Should the advance directives of refusing life-saving treatments or requesting euthanasia of persons with dementia who express changed minds or are often in a happy state be fulfilled? There are two autonomy-related positions. The mainstream position in philosophical discussions supports the priority of ADs based on precedent autonomy. Buchanan and Brock, and Dworkin represent this view. The other position supports the priority of PWDs’ current wishes based on minimal autonomy represented (...)
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  • “I don’t need my patients’ opinion to withdraw treatment”: patient preferences at the end-of-life and physician attitudes towards advance directives in England and France.Ruth Horn - 2014 - Medicine, Health Care and Philosophy 17 (3):425-435.
    This paper presents the results of a qualitative interview study exploring English and French physicians’ moral perspectives and attitudes towards end-of-life decisions when patients lack capacity to make decisions for themselves. The paper aims to examine the importance physicians from different contexts accord to patient preferences and to explore the role of advance directives in each context. The interviews focus on problems that emerge when deciding to withdraw/-hold life-sustaining treatment from both conscious and unconscious patients; decision-making procedures and the participation (...)
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  • Advance directives in psychiatric care: a narrative approach.G. Widdershoven - 2001 - Journal of Medical Ethics 27 (2):92-97.
    Advance directives for psychiatric care are the subject of debate in a number of Western societies. By using psychiatric advance directives , it would be possible for mentally ill persons who are competent and with their disease in remission, and who want timely intervention in case of future mental crisis, to give prior authorisation to treatment at a later time when they are incompetent, have become non-compliant, and are refusing care. Thus the devastating consequences of recurrent psychosis could be minimised.Ulysses (...)
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  • Significance of past statements: speech act theory.Joanne Gordon - 2013 - Journal of Medical Ethics 39 (9):570-572.
    In W v M, a judge concluded that M's past statements should not be given weight in a best interests assessment. Several commentators in the ethics literature have argued this approach ignored M's autonomy. In this short article I demonstrate how the basic tenets of speech act theory can be used to challenge the inherent assumption that past statements represent an individual's beliefs, choices or decisions. I conclude that speech act theory, as a conceptual tool, has a valuable contribution to (...)
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  • Do New Neuroimaging Findings Challenge the Ethical Basis of Advance Directives in Disorders of Consciousness?Orsolya Friedrich, Andreas Wolkenstein, Ralf J. Jox, Niek Rogger & Claudia Bozzaro - 2018 - Cambridge Quarterly of Healthcare Ethics 27 (4):675-685.
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  • Fission theories of Original Guilt.Nikk Effingham - 2022 - International Journal for Philosophy of Religion 92 (1):15-30.
    One reading of the Doctrine of Original Sin has it that we are guilty of a sin committed by Adam, thousands of years ago. Fission theorists account for this by saying that Adam fissioned after he sinned and that each of us is one of his ‘fission successors’. This paper recaps the current discussion in the literature about this theory, arguing that the proposed version does not work for reasons already raised by Rea and Hudson. I then introduce a new (...)
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  • Punishing Wrongs from the Distant Past.Thomas Douglas - 2019 - Law and Philosophy 38 (4):335-358.
    On a Parfit-inspired account of culpability, as the psychological connections between a person’s younger self and older self weaken, the older self’s culpability for a wrong committed by the younger self diminishes. Suppose we accept this account and also accept a culpability-based upper limit on punishment severity. On this combination of views, we seem forced to conclude that perpetrators of distant past wrongs should either receive discounted punishments or be exempted from punishment entirely. This article develops a strategy for resisting (...)
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  • The problem of pain management among persons with dementia, personhood, and the ontology of relationships.David C. Malloy & Thomas Hadjistavropoulos - 2004 - Nursing Philosophy 5 (2):147-159.
    While pain is common among seniors, it is not adequately treated or managed. In particular, pain in seniors with dementia is often undertreated and undermanaged. Although the undertreatment of pain among persons with cognitive impairments represents a serious ethical concern for pain clinicians, most writers in the area explain the undertreatment of pain by focusing on issues related to liability, fears of addiction to opioids, and erroneous beliefs that pain is a normal part of the ageing process. We argue that (...)
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  • Alzheimer disease and pre-emptive suicide.Dena S. Davis - 2014 - Journal of Medical Ethics 40 (8):543-549.
    There is a flood of papers being published on new ways to diagnose Alzheimer disease before it is symptomatic, involving a combination of invasive tests , and pen and paper tests. This changes the landscape with respect to genetic tests for risk of AD, making rational suicide a much more feasible option. Before the availability of these presymptomatic tests, even someone with a high risk of developing AD could not know if and when the disease was approaching. One could lose (...)
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  • Advance Directives and Alzheimer's Disease.Deena S. Davis - 2018 - Journal of Law, Medicine and Ethics 46 (3):744-748.
    Americans who are afraid of living for many years with Alzheimer's might seek a way to end their lives early, when their dementia has just entered the moderate phase. There is no legal process for doing so. In this paper I argue that advance directives, in particular, are not a legal solution for those who prefer to die rather than suffer years of dementia. The problem is that an advance directive only works to hasten death when there is a life-threatening (...)
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  • Patientenselbstbestimmung und Patientenverfügungen aus der Sicht von Patienten mit amyotropher Lateralsklerose.Dipl Psych Nicole Burchardi, Oliver Rauprich & Prof Dr Jochen Vollmann - 2004 - Ethik in der Medizin 16 (1):7-21.
    Patientenselbstbestimmung und Patientenverfügungen haben zunehmende Bedeutung und Beachtung erfahren. In der vorliegenden qualitativen Studie wurden 15 Patientinnen und Patienten mit amyotropher Lateralsklerose —einer unheilbaren, chronisch-degenerativen Erkrankung mit vorhersehbarer Symptomatik—interviewt, um zu erfahren, welche Werte und Kriterien sie bei prospektiven Entscheidungen am Lebensende und bei der Abfassung von PV zugrunde legen. Die Auswertung erfolgte nach der Methode der „grounded theory“. Die befragten Patientinnen und Patienten befürworteten einen Verzicht auf lebenserhaltende Behandlungen, wenn sie keine hinreichenden Lebensmöglichkeiten mehr sahen, d. h. wenn sie (...)
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  • Descendants and advance directives.Christopher Buford - 2014 - Monash Bioethics Review 32 (3-4):217-231.
    Some of the concerns that have been raised in connection to the use of advance directives are of the epistemic variety. Such concerns highlight the possibility that adhering to an advance directive may conflict with what the author of the directive actually wants at the time of treatment. However, at least one objection to the employment of advance directives is metaphysical in nature. The objection to be discussed here, first formulated by Rebecca Dresser and labeled by Allen Buchanan as the (...)
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  • Is an account of identity necessary for bioethics? What post-genomic biomedicine can teach us.Giovanni Boniolo - 2013 - Studies in History and Philosophy of Biological and Biomedical Sciences 44 (3):401-411.
    Is a theory of identity necessary for bioethics? In this paper I investigate that question starting from an empirical explication of identity based on post-genomics, in particular on epigenetics. After analysing whether the classic problems a theory of identity has to cope with also affect the proposed epigenetic account of identity, I deal with three topics to offer an insight on the relationship between that account and bioethics.
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  • Demented patients and the quandaries of identity: setting the problem, advancing a proposal.Giovanni Boniolo - 2021 - History and Philosophy of the Life Sciences 43 (1):1-16.
    In the paper, after clarifying terms such as ‘identity’, ‘self’ and ‘personhood’, I propose an empirical account of identity based on the notion of “whole phenotype”. This move allows one to claim the persistence of the individuals before and after their being affected by dementia. Furthermore, I show how this account permits us to address significant questions related to demented individuals’ loss of the capacity of moral decisions.
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  • Choosing for Others as Continuing a Life Story: The Problem of Personal Identity Revisited.Jeffrey Blustein - 1999 - Journal of Law, Medicine and Ethics 27 (1):20-31.
    Philosophically, the most interesting objection to the reliance on advance directives to guide treatment decisions for formerly competent patients is the argument from the loss of personal identity. Starting with a psychological continuity theory of personal identity, the argument concludes that the very conditions that bring an advance directive into play may destroy the conditions necessary for personal identity, and so undercut the authority of the directive. In this article, I concede that if the purpose of a theory of personal (...)
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  • Choosing for others as Continuing a Life Story: The Problem of Personal Identity Revisited.Jeffrey Blustein - 1999 - Journal of Law, Medicine and Ethics 27 (1):20-31.
    Philosophically, the most interesting objection to the reliance on advance directives to guide treatment decisions for formerly competent patients is the argument from the loss of personal identity. Starting with a psychological continuity theory of personal identity, the argument concludes that the very conditions that bring an advance directive into play may destroy the conditions necessary for personal identity, and so undercut the authority of the directive. In this article, I concede that if the purpose of a theory of personal (...)
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  • Ulysses Arrangements in Psychiatric Treatment: Towards Proposals for Their Use Based on ‘Sharing’ Legal Capacity.Phil Bielby - 2014 - Health Care Analysis 22 (2):114-142.
    A ‘Ulysses arrangement’ (UA) is an agreement where a patient may arrange for psychiatric treatment or non-treatment to occur at a later stage when she expects to change her mind. In this article, I focus on ‘competence-insensitive’ UAs, which raise the question of the permissibility of overriding the patient’s subsequent decisionally competent change of mind on the authority of the patient’s own prior agreement. In “The Ethical Justification for Ulysses Arrangements”, I consider sceptical and supportive arguments concerning competence-insensitive UAs, and (...)
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  • Advance directives for non-therapeutic dementia research: some ethical and policy considerations.R. L. Berghmans - 1998 - Journal of Medical Ethics 24 (1):32-37.
    This paper explores the use of advance directives in clinical dementia research. The focus is on advance consent to participation of demented patients in non-therapeutic research involving more than minimal risks and/or burdens. First, morally relevant differences between advance directives for treatment and care, and advance directives for dementia research are discussed. Then attention is paid to the philosophical issue of dementia and personal identity, and the implications for the moral authority of research advance directives. Thirdly, a number of practical (...)
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  • I Have Got a Personal Non-identity Problem: On What We Owe Our Future Selves.Didde Boisen Andersen - 2020 - Res Publica 27 (1):129-144.
    The idea that people’s numerical identity may sometimes be discontinuous over time initially appears to provide useful material for defending restrictions on putatively self-harming behaviour in a non-paternalistic manner. According to this line of thinking, sometimes a putatively self-harming act is, in fact, a matter of ‘harm to others’. Yet, in this paper I argue that if we, as we ought to do, take into consideration the non-identity problem, this challenges the notion that the agent at T1 is in fact (...)
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  • Personal Identity and Ethics.David Shoemaker - 2008 - Stanford Encyclopedia of Philosophy.
    What justifies our holding a person morally responsible for some past action? Why am I justified in having a special prudential concern for some future persons and not others? Why do many of us think that maximizing the good within a single life is perfectly acceptable, but maximizing the good across lives is wrong? In these and other normative questions, it looks like any answer we come up with will have to make an essential reference to personal identity. So, for (...)
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  • “As Long As I’m Me”: From Personhood to Personal Identity in Dementia and Decisionmaking.James Toomey - 2021 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 4 (1).
    As older people begin to develop dementia, we confront ethical questions about when and how to intervene in their increasingly compromised decision-making. The prevailing approach in bioethics to tackling this challenge has been to develop theories of “decision-making capacity” based on the same characteristics that entitle the decisions of moral persons to respect in general. This article argues that this way of thinking about the problem has missed the point. Because the disposition of property is an identity-dependent right, what matters (...)
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  • The Stony Metaphysical Heart of Animalism.David Shoemaker - 2016 - In Stephan Blatti & Paul Snowdon (eds.), Animalism. Oxford University Press. pp. 303-328.
    Animalism—the view that the identity across time of individuals like us consists in the persistence of our animal organisms—does poorly at accounting for our identity-related practical concerns. The reason is straightforward: whereas our practical concerns seem to track the identity of psychological creatures—persons—animalism focuses on the identity of human organisms who are not essentially persons. This lack of fit between our practical concerns and animalism has been taken to reduce animalism’s plausibility (relative to psychological criteria of identity). In this paper, (...)
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  • Don't Ask, Look! Linguistic Corpora as a Tool for Conceptual Analysis.Roland Bluhm - 2013 - In Migue Hoeltje, Thomas Spitzley & Wolfgang Spohn (eds.), Was dürfen wir glauben? Was sollen wir tun? Sektionsbeiträge des achten internationalen Kongresses der Gesellschaft für Analytische Philosophie e.V. DuEPublico. pp. 7-15.
    Ordinary Language Philosophy has largely fallen out of favour, and with it the belief in the primary importance of analyses of ordinary language for philosophical purposes. Still, in their various endeavours, philosophers not only from analytic but also from other backgrounds refer to the use and meaning of terms of interest in ordinary parlance. In doing so, they most commonly appeal to their own linguistic intuitions. Often, the appeal to individual intuitions is supplemented by reference to dictionaries. In recent times, (...)
     
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  • Two Problems with the Socio-Relational Critique of Distributive Egalitarianism.Christian Seidel - 2013 - In Miguel Hoeltje, Thomas Spitzley & Wolfgang Spohn (eds.), Was dürfen wir glauben? Was sollen wir tun? Sektionsbeiträge des achten internationalen Kongresses der Gesellschaft für Analytische Philosophie e.V. Duisburg-Essen: DuEPublico. pp. 525-535.
    Distributive egalitarians believe that distributive justice is to be explained by the idea of distributive equality (DE) and that DE is of intrinsic value. The socio-relational critique argues that distributive egalitarianism does not account for the “true” value of equality, which rather lies in the idea of “equality as a substantive social value” (ESV). This paper examines the socio-relational critique and argues that it fails because – contrary to what the critique presupposes –, first, ESV is not conceptually distinct from (...)
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  • Lessons from Odysseus and beyond: Why lacking morality means lacking totality in the mental capacity act 2005.Elizabeth Robinson - unknown
    The law of England and Wales provides that an adult with capacity has the right to refuse medical treatment both contemporaneously and in an advance refusal. Legislation separates general advance refusals of treatment from advance refusals of life-sustaining treatment. The law, outlined in ss.24 to 26 of the Mental Capacity Act 2005, is stricter for creation of the latter. These sections brought with them a new age of interests by purporting to elevate individual autonomy as the primary concern. Beginning with (...)
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