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  1. Restricting Access, Stigmatizing Disability?David Wasserman & Noah Berens - 2022 - American Journal of Bioethics 22 (2):25-27.
    In their comprehensive article, Bayefsky and Berkman outline a framework for limiting access to certain types of fetal genetic information through professional self-regulation. Given the rap...
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  • Implementing Expanded Prenatal Genetic Testing: Should Parents Have Access to Any and All Fetal Genetic Information?Michelle J. Bayefsky & Benjamin E. Berkman - 2022 - American Journal of Bioethics 22 (2):4-22.
    Prenatal genetic testing is becoming available for an increasingly broad set of diseases, and it is only a matter of time before parents can choose to test for hundreds, if not thousands, of genetic conditions in their fetuses. Should access to certain kinds of fetal genetic information be limited, and if so, on what basis? We evaluate a range of considerations including reproductive autonomy, parental rights, disability rights, and the rights and interests of the fetus as a potential future child. (...)
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  • Should Pregnant Women Be Charged for Non-Invasive Prenatal Screening? Implications for Reproductive Autonomy and Equal Access.Eline M. Bunnik, Adriana Kater-Kuipers, Robert-Jan H. Galjaard & Inez D. de Beaufort - 2020 - Journal of Medical Ethics 46 (3):194-198.
    The introduction of non-invasive prenatal testing in healthcare systems around the world offers an opportunity to reconsider funding policies for prenatal screening. In some countries with universal access healthcare systems, pregnant women and their partners are asked to pay for NIPT. In this paper, we discuss two important rationales for charging women for NIPT: to prevent increased uptake of NIPT and to promote informed choice. First, given the aim of prenatal screening, high or low uptake rates are not intrinsically desirable (...)
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