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Disability and the Good Human Life

Cambridge University Press (2013)

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  1. Issues for a phenomenology of illness – transgressing psychologizations.Thor Hennelund Nielsen - 2022 - Medicine, Health Care and Philosophy 25 (4):603-613.
    Phenomenology of illness has grown increasingly popular in recent times. However, the most prominent phenomenologists of illness defend a psychologizing notion of phenomenology, which argues that illness is primarily constituted by embodied experiences, feelings, and emotions of suffering, alienation etc. The article argues that this gives rise to three issues that need to be addressed. (1) How is the theory of embodiment compatible with the strong distinction between disease and illness? (2) What is the difference between problematic embodiment and illness? (...)
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  • Epistemic Virtue, Prospective Parents and Disability Abortion.James B. Gould - 2019 - Journal of Bioethical Inquiry 16 (3):389-404.
    Research shows that a high majority of parents receiving prenatal diagnosis of intellectual disability terminate pregnancy. They have reasons for rejecting a child with intellectual disabilities—these reasons are, most commonly, beliefs about quality of life for it or them. Without a negative evaluation of intellectual disability, their choice makes no sense. Disability-based abortion has been critiqued through virtue ethics for being inconsistent with admirable moral character. Parental selectivity conflicts with the virtue of acceptingness and exhibits the vice of wilfulness. In (...)
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  • Culpable Ignorance, Professional Counselling, and Selective Abortion of Intellectual Disability.James B. Gould - 2020 - Journal of Bioethical Inquiry 17 (3):369-381.
    In this paper I argue that selective abortion for disability often involves inadequate counselling on the part of reproductive medicine professionals who advise prospective parents. I claim that prenatal disability clinicians often fail in intellectual duty—they are culpably ignorant about intellectual disability. First, I explain why a standard motivation for selective abortion is flawed. Second, I summarize recent research on parent experience with prenatal professionals. Third, I outline the notions of epistemic excellence and deficiency. Fourth, I defend culpable ignorance as (...)
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  • Selektion zum Wohl des zukünftigen Kindes?: Präimplantationsdiagnostik, „prokreatives Wohltun“ und die Verantwortung angehender Eltern.Ruth Denkhaus - 2021 - Ethik in der Medizin 34 (1):27-48.
    Der Beitrag setzt sich kritisch mit dem Prinzip des prokreativen Wohltuns von Julian Savulescu und seinen Implikationen für den Umgang mit der Präimplantationsdiagnostik auseinander. PB fordert angehende Eltern dazu auf, aus mehreren möglichen zukünftigen Kindern dasjenige auszuwählen, dessen Leben voraussichtlich am besten verlaufen wird. Paare mit Kinderwunsch sind danach zumindest unter bestimmten Umständen moralisch verpflichtet, eine PID in Anspruch zu nehmen, um die Weitergabe genetisch bedingter Krankheiten zu verhindern. Die Auswahl von Embryonen im Rahmen einer PID kann jedoch nur dann (...)
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