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  1. Action research as a catalyst for change: Empowered nurses facilitating patient participation in rehabilitation.Randi Steensgaard, Raymond Kolbaek, Julie Borup Jensen & Sanne Angel - 2021 - Nursing Inquiry 28 (1):e12370.
    Based on action research as a practitioner‐involving approach, this article communicates the findings of a two‐year study on implementing patient participation as an empowering learning process for both patients and rehabilitation nurses. At a rehabilitation facility for patients who have sustained spinal cord injuries, eight nurses were engaged throughout the process aiming at improving patient participation. The current practice was explored to understand possibilities and obstacles to patient participation. Observations, interviews and logbooks, creative workshops and reflective meetings led to the (...)
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  • Understanding the challenges of palliative care in everyday clinical practice: an example from a COPD action research project.Geralyn Hynes, Fiona Kavanagh, Christine Hogan, Kitty Ryan, Linda Rogers, Jenny Brosnan & David Coghlan - 2015 - Nursing Inquiry 22 (3):249-260.
    Palliative care seeks to improve the quality of life for patients suffering from the impact of life‐limiting illnesses. Palliative care encompasses but is more than end‐of‐life care, which is defined as care during the final hours/days/weeks of life. Although palliative care policies increasingly require all healthcare professionals to have at least basic or non‐specialist skills in palliative care, international evidence suggests there are difficulties in realising such policies. This study reports on an action research project aimed at developing respiratory nursing (...)
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  • Dealing with ethical and existential issues at end of life through co-creation.Jessica Hemberg & Elisabeth Bergdahl - 2020 - Nursing Ethics 27 (4):1012-1031.
    BackgroundIn research on co-creation in nursing, a caring manner can be used to create opportunities for the patient to reach vital goals and thereby increase the patient’s quality of life in palliative home care. This can be described as an ethical cornerstone and the goal of palliative care. Nurses must be extra sensitive to patients’ and their relatives’ needs with regard to ethical and existential issues and situations in home care encounters, especially at the end of life.AimThe aim of this (...)
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  • Ethical sensitivity and perceptiveness in palliative home care through co-creation.Jessica Hemberg & Elisabeth Bergdahl - 2020 - Nursing Ethics 27 (2):446-460.
    Background:In research on co-creation in nursing, a caring manner can be used to create opportunities whereby the patient’s quality of life can be increased in palliative home care. This can be described as an ethical cornerstone and the goal of palliative care. To promote quality of life, nurses must be sensitive to patients’ and their relatives’ needs in care encounters. Co-creation can be defined as the joint creation of vital goals for patients through the process of shared knowledge between nurses, (...)
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  • Co‐creating possibilities for patients in palliative care to reach vital goals – a multiple case study of home‐care nursing encounters.Elisabeth Bergdahl, Eva Benzein, Britt-Marie Ternestedt, Eva Elmberger & Birgitta Andershed - 2013 - Nursing Inquiry 20 (4):341-351.
    The patient’s home is a common setting for palliative care. This means that we need to understand current palliative care philosophy and how its goals can be realized in home‐care nursing encounters (HCNEs) between the nurse, patient and patient’s relatives. The existing research on this topic describes both a negative and a positive perspective. There has, however, been a reliance on interview and descriptive methods in this context. The aim of this study was to explore planned HCNEs in palliative care. (...)
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