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  1. Walking a Fine Germline: Synthesizing Public Opinion and Legal Precedent to Develop Policy Recommendations for Heritable Gene-Editing.Shawna Benston - forthcoming - Journal of Bioethical Inquiry:1-11.
    Gene-editing technologies, such as CRISPR/Cas9, are internationally ethically fraught. In the United States, policy surrounding gene-editing has yet to be implemented, while the science continues to speed ahead. However, it is not enough that policy be implemented: in order for policy to establish limits for the technology such that benefits are possible while threats are kept at bay, such policy must be ethical. In turn, the ethics of gene-editing is a culturally determined field of inquiry. This piece presents a proposal (...)
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  • Frame Reflection Lab: A Playful Method for Frame Reflection on Synthetic Biology.Marjoleine G. van der Meij, Anouk A. L. M. Heltzel, Jacqueline E. W. Broerse & Frank Kupper - 2018 - NanoEthics 12 (2):155-172.
    Synthetic biology is an emerging technology that asks for inclusive reflection on how people frame the field. To unravel how we can facilitate such reflection, this study evaluates the Frame Reflection Lab. Building upon playfulness design principles, the FRL comprises a workshop with video-narratives and co-creative group exercises. We studied how the FRL facilitated frame reflection by organizing workshops with various student groups. Analysis of 12 group conversations and 158 mini-exit surveys yielded patterns in first-order reflection as well as patterns (...)
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  • Science Fiction Authors’ Perspectives on Human Genetic Engineering.Derek So, Kelsey Crocker, Robert Sladek & Yann Joly - forthcoming - Medical Humanities:medhum-2020-012041.
    Participants in the human gene editing debate often consider examples from science fiction but have rarely engaged directly with the science fiction community as stakeholders. To understand how science fiction authors develop and spread their views on gene editing, we created an online questionnaire that was answered by 78 authors, including 71 who had previously written about genetic engineering. When asked which ethical issues science fiction should explore, respondents most frequently mentioned affordability, new social divisions, consent and unforeseen safety risks. (...)
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  • Islamic Perspectives on CRISPR/Cas9-Mediated Human Germline Gene Editing: A Preliminary Discussion.Noor Munirah Isa, Nurul Atiqah Zulkifli & Saadan Man - 2020 - Science and Engineering Ethics 26 (1):309-323.
    The recent development of CRISPR/Cas9 technology has rekindled the ethical debate concerning human germline modification that has begun decades ago. This inexpensive technology shows tremendous promise in disease prevention strategies, while raising complex ethical concerns about safety and efficacy of the technology, human dignity, tampering with God’s creation, and human genetic enhancement. Germline gene editing may result in heritable changes in the human genome, therefore the question of whether it should be allowed requires deep and careful discussion from various perspectives. (...)
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  • Everything in Moderation, Even Hype: Learning From Vaccine Controversies to Strike a Balance with CRISPR.Shawna Benston - 2017 - Journal of Medical Ethics 43 (12):819-823.
    The ease and applicability of CRISPR/Cas9––a new and precise gene editing and reproductive technology––have garnered hype and heightened concern about its potential ‘unprecedented and horrific consequences’ and have led many scientific leaders to call for a moratorium on its research and use. CRISPR appears distinctly more controversial than previous technological innovations, with a greater reach and speed of human treatment and enhancement; however, we have seen similarly inflated hopes and fears in response to other medical innovations for well over a (...)
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  • Is It All About Revising, Correcting, and Transferring Genes?Vasilija Rolfes, Uta Bittner, Heiner Fangerau & Karsten Weber - 2020 - American Journal of Bioethics 20 (8):30-32.
    Volume 20, Issue 8, August 2020, Page 30-32.
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