- Respect for Persons Is Not Always About Consent: The Importance of Context.Liza Dawson - 2024 - American Journal of Bioethics 24 (4):115-118.details
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The Principle-at-Risk Analysis (PaRA): Operationalising Digital Ethics by Bridging Principles and Operations of a Digital Ethics Advisory Panel.André T. Nemat, Sarah J. Becker, Simon Lucas, Sean Thomas, Isabel Gadea & Jean Enno Charton - 2023 - Minds and Machines 33 (4):737-760.details
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A Critical Examination of Informed Consent Approaches in Pragmatic Cluster-Randomized Trials.Cory E. Goldstein - 2022 - Dissertation, University of Western Ontariodetails
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Research based on existing clinical data and biospecimens: a systematic study of patients’ opinions.Arne Einar Vaaler, Linda Tømmerdal Roten & Hilde Eikemo - 2022 - BMC Medical Ethics 23 (1):1-8.details
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Istoria and Eureka: Valuing Story and Discovery in Research and Publication in the Human Sciences.Susan Shaw & Keith Tudor - forthcoming - Ethics and Social Welfare.details
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Emergency department patients’ attitudes towards the use of data in their clinical record for research without their consent.Chase Schultz-Swarthfigure, Anne-Maree Kelly & Deborah Zion - 2022 - Journal of Medical Ethics 49 (1):75-78.details
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Is there a civic duty to support medical AI development by sharing electronic health records?Sebastian Müller - 2022 - BMC Medical Ethics 23 (1):1-12.details
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Ethical Issues in Consent for the Reuse of Data in Health Data Platforms.Alex McKeown, Miranda Mourby, Paul Harrison, Sophie Walker, Mark Sheehan & Ilina Singh - 2021 - Science and Engineering Ethics 27 (1):1-21.details
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Donor-funded research: permissible, not perfect.Mike King & Angela Ballantyne - 2019 - Journal of Medical Ethics 45 (1):36-40.details
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Remote monitoring of medication adherence and patient and industry responsibilities in a learning health system.Junhewk Kim, Austin Connor Kassels, Nathaniel Isaac Costin & Harald Schmidt - 2020 - Journal of Medical Ethics 46 (6):386-391.details
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Haben Patient*innen die moralische Pflicht, ihre klinischen Daten für Forschung bereitzustellen? Eine kritische Prüfung möglicher Gründe.Martin Jungkunz, Anja Köngeter, Katja Mehlis, Markus Spitz, Eva C. Winkler & Christoph Schickhardt - 2022 - Ethik in der Medizin 34 (2):195-220.details
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Do patients have a moral duty to provide their clinical data for research? A critical examination of possible reasons.Martin Jungkunz, Anja Köngeter, Katja Mehlis, Markus Spitz, Eva C. Winkler & Christoph Schickhardt - 2022 - Ethik in der Medizin 34 (2):195-220.details
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In response to Ballantyne and Schaefer’s ‘Consent and the ethical duty to participate in health data research’.Nilay Hepgul, Katherine E. Sleeman, Alice M. Firth, Anna Johnston, James T. H. Teo, William Bernal, Richard J. B. Dobson & Irene J. Higginson - 2019 - Journal of Medical Ethics 45 (5):351-352.details
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Genetic research and the collective good: participants as leaders to reconcile individual and public interests.Ilaria Galasso & Susi Geiger - forthcoming - Journal of Medical Ethics.details
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Meeting the needs of underserved populations: setting the agenda for more inclusive citizen science of medicine.Amelia Fiske, Barbara Prainsack & Alena Buyx - 2019 - Journal of Medical Ethics 45 (9):617-622.details
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Status Distrust of Scientific Experts.Hugh Desmond - 2022 - Social Epistemology 36 (5):586-600.details
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Precision Medicine, Data, and the Anthropology of Social Status.Hugh Desmond - 2021 - American Journal of Bioethics 21 (4):80-83.details
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Disambiguating the benefits and risks from public health data in the digital economy.Sarah Cheung - 2020 - Big Data and Society 7 (1).details
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Waving away waivers: an obligation to contribute to ‘herd knowledge’ for data linkage research?Owen M. Bradfield - 2021 - Sage Publications Ltd: Research Ethics 18 (2):151-162.details
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Waving away waivers: an obligation to contribute to ‘herd knowledge’ for data linkage research?Owen M. Bradfield - 2022 - Research Ethics 18 (2):151-162.details
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Taxonomy of justifications for consent waivers: When and why are public views relevant?Angela Ballantyne & G. Owen Schaefer - 2019 - Journal of Medical Ethics 45 (5):353-354.details
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Towards trust-based governance of health data research.Marieke A. R. Bak, M. Corrette Ploem, Hanno L. Tan, M. T. Blom & Dick L. Willems - 2023 - Medicine, Health Care and Philosophy 26 (2):185-200.details
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How to design a governable digital health ecosystem.Jessica Morley & Luciano Floridi - manuscriptdetails
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