- Views on sharing mental health data for research purposes: qualitative analysis of interviews with people with mental illness.Emily Watson, Sue Fletcher-Watson & Elizabeth Joy Kirkham - 2023 - BMC Medical Ethics 24 (1):1-12.details
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The social licence for data-intensive health research: towards co-creation, public value and trust.Johannes J. M. van Delden, Menno Mostert, Ghislaine J. M. W. van Thiel, Shona Kalkman & Sam H. A. Muller - 2021 - BMC Medical Ethics 22 (1):1-9.details
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Mining social media data: How are research sponsors and researchers addressing the ethical challenges?Joanna Taylor & Claudia Pagliari - 2018 - Research Ethics 14 (2):1-39.details
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Blockchain, consent and prosent for medical research.Sebastian Porsdam Mann, Julian Savulescu, Philippe Ravaud & Mehdi Benchoufi - 2021 - Journal of Medical Ethics 47 (4):244-250.details
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Ethical issues in biomedical research using electronic health records: a systematic review.Jan Piasecki, Ewa Walkiewicz-Żarek, Justyna Figas-Skrzypulec, Anna Kordecka & Vilius Dranseika - 2021 - Medicine, Health Care and Philosophy 24 (4):633-658.details
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Mining the Data: Exploring Rural Patients’ Attitudes about the Use of Their Personal Information in Research.Jennifer B. McCormick, Margaret Hopkins, Erik B. Lehman & Michael J. Green - 2022 - AJOB Empirical Bioethics 13 (2):89-106.details
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Facing new challenges to informed consent processes in the context of translational research: the case in CARPEM consortium.Marie-France Mamzer, Anita Burgun, Cécile Badoual, Pierre Laurent-Puig & Elise Jacquier - 2021 - BMC Medical Ethics 22 (1):1-13.details
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Secondary research use of personal medical data: patient attitudes towards data donation.Michael Krawczak, Matthias Laudes, Bimba Franziska Hoyer, Christoph Borzikowsky & Gesine Richter - 2021 - BMC Medical Ethics 22 (1):1-10.details
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Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence.Shona Kalkman, Johannes van Delden, Amitava Banerjee, Benoît Tyl, Menno Mostert & Ghislaine van Thiel - 2022 - Journal of Medical Ethics 48 (1):3-13.details
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Pay No Attention to That Man behind the Curtain: An Ethical Analysis of the Monetization of Menstruation App Data.Amelia Hood, Marielle S. Gross & Bethany Corbin - 2021 - International Journal of Feminist Approaches to Bioethics 14 (2):144-156.details
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Controversies between regulations of research ethics and protection of personal data: informed consent at a cross-road.Eugenijus Gefenas, J. Lekstutiene, V. Lukaseviciene, M. Hartlev, M. Mourby & K. Ó Cathaoir - 2021 - Medicine, Health Care and Philosophy 25 (1):23-30.details
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Should free-text data in electronic medical records be shared for research? A citizens’ jury study in the UK.Elizabeth Ford, Malcolm Oswald, Lamiece Hassan, Kyle Bozentko, Goran Nenadic & Jackie Cassell - 2020 - Journal of Medical Ethics 46 (6):367-377.details
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A qualitative study of big data and the opioid epidemic: recommendations for data governance.Elizabeth A. Evans, Elizabeth Delorme, Karl Cyr & Daniel M. Goldstein - 2020 - BMC Medical Ethics 21 (1):1-13.details
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Who benefits and how? Public expectations of public benefits from data-intensive health research.Sarah Cunningham-Burley, Emily Creamer, Carol Porteous & Mhairi Aitken - 2018 - Big Data and Society 5 (2).details
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Advancing a Data Justice Framework for Public Health Surveillance.Mara Buchbinder, Eric Juengst, Stuart Rennie, Colleen Blue & David L. Rosen - 2022 - AJOB Empirical Bioethics 13 (3):205-213.details
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Motives of contributing personal data for health research: (non-)participation in a Dutch biobank.R. Broekstra, E. L. M. Maeckelberghe, J. L. Aris-Meijer, R. P. Stolk & S. Otten - 2020 - BMC Medical Ethics 21 (1):1-11.details
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